Wednesday, January 13, 2016

DAY SEVEN - DAY OF REST

SLEEPY BOY

Good news from Tash's spinal tap, the presence of his leukemic cells went from 11% to 3% (YAAAAYYYYYYY!!!) in his spinal fluid. The power of prayer. Thank you to EVERYONE that has said even one prayer for our sweet boy, it IS working. Unfortunately, we did notice some abnormal swelling during his last diaper change at the hospital, he has a hernia, (I mean seriously?!) The doctors did some prodding and say it's not "emergent" at this time. He may need to have surgery to repair the hernia but right now they are hoping avoid it. It looks painful to me but they assure me its not, and as long as that part of his intestine is receiving blood flow, the surgery can wait.
MARSHMALLOW MAN (AKA DADDY)

EVICTION NOTICE ;) (DISCHARGE)

With the good news yesterday also came a large dose of our new reality, which was hard for me. We moved out of the hospital and in to outpatient housing. We are at the Ronald McDonald house right now, waiting for a spot to open up at the Target House. Most people may not know this but St. Jude has around 100 beds in the actual hospital. They operate mainly as an outpatient clinic. Which means we will shuttle to the hospital daily for "clinic". Clinic could be anything from visiting with our medical team, drawing lab work, blood, receiving chemo, etc. Our medical team gave us the day off (thankfully) to get settled and prepared for the upcoming days. Jonathan had to head back to Florida today. I had a daydream yesterday that we all went to the airport together and went home, like everything was fine and this was all over. Wouldn't that be nice?! ;) Jonathan is more than my husband. He is my partner, my best friend and my rock, I am selfishly saddened that he is leaving but also so thrilled for our girls. They NEED their Daddy. It gives me great comfort knowing they will have him home. Thankfully, Mimi is here in Memphis with me and Tash and Pap will be here this weekend. I truly do not know what we would do without our parents. No matter how old we get, we will always need our parents.
Mimi & Tash


Tash has chemo and spinal taps on Friday and Monday. Say a prayer for his strength, that he stays healthy and we receive more positive results.

KNOCK OUT CANCER


We are #TASHTUFF! 

11 comments:

  1. Good news! Nikole, he is so precious! Continued prayers, for everyone!

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  2. Wonderful news!! We will keep sending our prayers and love! Big Hugs!!

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  3. God bless that baby boy Tash and his mommy. I love y'all and pray every day and night for all of you. Love bobbie jean

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  5. Hi Guys, Nana Pat is thinking of you and praying for you. I love you and am so thrilled you're having good news. I'll be in Memphis in about four weeks and hope to be able to give you a big hug. #Tashtuff

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  6. Praying every day for that angel boy. Remember, nothing is impossible with God.

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  7. I will be sure to say a daily prayer for your sweet boy! Thinking of you and your entire family, so glad to read good news!

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  8. Yay! That is AWESOME news! Let's keep going and we'll keep praying!

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  9. Continue prayer for your family. Hang in there Mama. God is good and faithful.

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