DAY 13-Becoming Regulars

Tash had another spinal tap yesterday. It took him a little longer than normal to come out of anesthesia, frankly I was becoming concerned. Finally, the nurse called the waiting room, he was awake and hungry hangry. As we turned the corner into post-op I could hear him crying, it was a relieving feeling at that moment. 

Whale-y Cute

We are becoming regulars in anesthesia. The "older" children have their spinal taps done in procedures but due to Tash's age all of his procedures are done in the operating room (OR). So we are making friends with the crew in the OR. Miss Lisa is our normal post-op nurse. She is a hoot and loves her some Tash, even though everytime she sees him he is hangry. Very. Hangry. (He gets it honestly ;)) He had a calm afternoon in observation after his procedure. 

Pap's Monkey

We headed in today for routine lab work. The results from his spinal tap were in, GREAT news, spinal fluid is clear of leukemia cells!! We will rejoice in this good news, but I want to explain this is just his spinal fluid. We will be checking bone marrow on Friday. Yes, his bone marrow aspiration and next spinal tap have been pushed to Friday. His platelets and hemoglobin were low today so routine blood work turned into an extra 6 hours at the medicine room. Platelet and blood transfusion. Luckily his sisters were here with him.

He seems to be inching closer to his old sleeping routine. (As I knock on wood) He had a good routine prior to diagnosis and then just like our life his sleep pattern did a complete 180. His days and nights were mixed up, his long naps  were in the morning and he wanted to cluster feed from 1-5AM. His rest is super important so we let him sleep when he wants and we alter our sleeping patterns. He is having difficulty with one of his oral antibiotics, in fact it made him vomit both times we administered today. I am hoping when we chat with his team tomorrow there is an alternate way to administer. He takes one of his other antibiotics in what they call an "eclipse ball" so we hook it up to his port, and we don't have to worry about giving it to him orally. Fingers crossed that is an option for his Levofloxacin. 

Pray for his comfort so he can rest tonight (Us too!)

We are #TASHTUFF!!

P.S. It's cold here. Like really, really, really cold.