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| Flat Sully's |
We've had busy couple of days, with long hours at clinic. A few folks warned us that a simple clinic visit for blood work can turn into a full day. They. Were. Right. We went in Thursday for lab work before his spinal tap on Friday. His platelets were low so he needed a transfusion. It only takes about 30 minutes for this particular transfusion, however we have to stay for 6 hours of observation after that. Just to give you an idea imagine sitting in an 8 x8 room with a hospital bed and two chairs for 8 hours - super fun right?! Mom and I take turns holding Tash as he's not super fond of laying in the hospital bed all day. Thankfully Mom is here and we have a TV in the room. It could definitely be worse....he could be an active 2 year old. Oy.
Tash had a spinal tap/chemo on Friday which meant he was NPO'ed at 4am, his procedure did not start until 10am but he was a trooper and stayed relatively calm. Mom walked with him for 2 hours in pre-op which kept him content. He was accompanied by the FLAT versions of his sisters (THANK YOU CHARLES, RACHEL, MAX and OLIVIA) We are very excited that the flat versions of Sloane and Scout will be able to join brother on his journey. The Stuarts also sent a flat version of Tash that we will send to the girls so he can be there for their adventures as well. First up, Sloane's 3rd birthday :)
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| Tash & Mimi |
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| Happy Baby |
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| Pre-Op with Mommy |
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| In Recovery |
Pap arrived on Saturday and is already re-organizing the room and making lists of things we need. Thankful to have him and his skills here with us. Tash is also excited to have another male around here ;)
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| iPad time with Pap |
We have a big week ahead of us, another spinal tap on Tuesday, and bone marrow aspiration on Thursday (Day 15). On Day 15, they will check his MRD status (MRD=minimal residual disease). MRD is the measurement of very small amounts of leukemia cells in the blood and bone marrow. If he still has leukemia cells in the bone marrow on Day 15, he will receive an extra dose of PEG (another chemo therapy drug).
Please keep the prayers a comin'!
We are #TASHTUFF!
Nikole- You are doing an amazing job. You are doing what all moms would do, but you are doing it with grace and your strength is shining through. I love y'all so much and pray every day for you and your family. My heart smiles to know your "Madre and padre" are there to help you. If there is anything I can do, you let me know. Love you always- Bobbie Jean
ReplyDeleteI want a flat Tolle family! Great idea and I'm sure the girls love it! You are amazing and Tash is ADORABLE! Keep taking it a day at a time! We are all routing for you guys!
ReplyDeleteSo glad you love the Flat Sullivans! We sent a mom, dad and Tash to the girls in Sloaney's birthday box this week - 2 sets so they don't have to share :) Love that Pap is organizing...and man after my own heart! All our love to the family, and little man. You guys are amazing and we will continue to send prayers and love your way! Prayers for a good week and great results!! You got this Tash!!
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